post

Tick, Tock, Tick, Tock

As my last birthday passed I began to hear an odd sound. It started off in quiet whispers but is getting louder and louder as time passes on . It is so loud now that I recognize it for what it is….my biological clock warning me the alarm is soon to sound and final call is fast approaching.

While we made the decision years ago to not have more children, I’ve waxed and waned with my feelings of maybe, possibly, reopening that door. I have researched adoption, even special needs adoption. I have researched foster parenting. I have researched genetic science if we did want to open the biological door. With two neurological defect pregnancies in my 20′s I doubt I have it in me emotionally to chance our genetic match up in my late 30′s.

But tonight as my oldest roamed the mall with his friends, I had the chance to just sit. That is all. Just be. This is VERY hard for me. But I did it. I watched children come and go and play and I marveled in how they could make toys out of chairs and each other. How rolling around in the grass outside by the fountains at Park Meadows mall was as exciting to them as a trip to the Lego store.

I marveled at their sense of joy and peace in just being. And while I enjoyed and marveled I realized I did not long. I did not long to scoop one of them and bring them home with me. I did not long to be one of the mothers watching them. I was content that my teen is becoming more independent. Content that my youngest will be a teen in a few short months.

Maybe because my youngest still needs me more than most kids his age do softens that blow. Maybe knowing that while Con got his permit to drive yesterday, Carter probably won’t be waiting at dmv on his 15th birthday. We know as a family it will take more than a few courses at Master Drive for Carter to be ready. He will get there, just not as fast as the other.

And maybe that is why the ticking is growing quieter. It’s quieting down so I can really listen. I can just be and open myself to hearing what I really need and want.

Seeing your child drive, talking about the pros and cons of colleges, planning and working a business with them, these are all things that tell me I have very few mothers days left with the kids still in my home, making me breakfast and watching movies in our pjs.

The truth is I need to stop listening to a faint tick tock and spend more days like today. Thinking about what I am and who I am when you remove the title of mother from the front of my job description. I hope and pray that my job as mother is always here, evolving the way it has over the last 16 years. But I need to know how I will survive when no one needs a ride, or girl advice, or lunch made. I need to know I can be a mom in the next stages instead of finding ways to return to the motherhood I know and feel safe in.

I guess the only answer I have for that damn ticking clock is that I need more time to figure out if this is all the children I was meant to mother, and if it is, I need time to figure out how I gracefully become the mother they need me to be for their ever evolving realities.

post

Boys. The Truth Is…You Are American

Dear Boys,

Every year at St Patrick’s Day we don our green and fly our Irish flag proudly. And we proudly tell you stories of our roots in England, Holland and Lithuania. But I just realized what an injustice we have done to you. You are not Irish. Or English. Or Dutch. Or Lithuanian. You are in fact, in the purist sense, Americans. Worn American Flag

You have ancestors who are the founding fathers of Concord, most of New Jersey, and key ports of New York. You have historical homes built by your great grandfathers still preserved today. You have great grandmothers who came here to flee both potato famines and communist rule.You have ancestors who have fought in every US War, and on both sides of the Civil War.

I am sorry. I thought that by telling you you were Irish, or Dutch, or what have you that we were giving you a historical identity. But I realize now how wrong I was. Every ancestor you have came to this country and gave their blood, sweat and tears so that you, my sons, could proudly say, I AM AMERICAN.

To say anything else trivialize your rich history of those who have built this country-whether they came here in the 1600′s or the 1900′s. YOU are their dream. YOU are why they came. They could not possibly conceived of the amazing opportunities that you have. They could not possibly have dreamed of a world as big as you have now. But it is because they dared to dream, that this world of opportunity is before you.

Let’s not dishonor their dreams anymore by ever saying that we are anything less than AMERICAN.

Love,

Mom

post

Proud Owner of An Ugly New Car

I know, you are all tired of me writing about the great car hunt. But it is over and I don’t want to leave you hanging….Not exactly a thing of beauty in my eyes. It is one of those car styles that you either love or hate. I happen to not be super crazy about the boxy style but I am super crazy about how well this fits a wheelchair user with little to no modifications. We will be installing a flip down transfer seat like this just to make it as safe as possible. We don’t have a cost yet on the transfer board but I am pretty confident it will fit in the $1200 budget Ford gives for after market mobility aids.

Available from http://www.accessunlimited.com/ In CO ADAPTIVE AUTOMOBILITY can install

I was completely in love with the Buick Enclave but after talking with after market mobility specialists found that it would be impossible to convert to a drop out, swivel seat which Carter would need due to seat height.  One person thought they might be able to but it would be more than the typical $8,000 cost to modify a seat to turn and come out of the car.The Flex seating is 6 inches lower than the Buick. It doesn’t sound like much to non wheelchair users but when you are transferring you really want to not have any height difference. There is only an 1 1/2 inch difference from his wheelchair.What the Flex lacks in outer beauty, it more than makes up for inside.

Not exactly roughing it

 

I am really liking the Ford My Touch Navigation with Sync. It is similar to the Yukon we already own On-Star system. There are things I like about both. I think On Star makes me feel safer with the installed satellite phone but the My Touch has some pretty nifty features, like the ability to recognize up to 5 phones through Bluetooth and sync them all with the car.I think I will miss driving my Yukon but it is still in the family here with a teenage driver about to hit the roads (dear lord help us all) and I do wish that the Enclave would have worked because it really is a sexy beast of a car. But this car is all about making life easier and safer for Carter and the Flex does that in amazing comfort at a great price.If you are in CO and looking for a car, both MedVed in Castle Rock and Groove on Arapahoe were extremely helpful to us. GM was more than generous in offering us special pricing but ultimately the Flex and Groove won out because they were just better fits for us personally. I would recommend dealing with Keith or Kyle at MedVed and Jon at Groove.I am grateful this is done. I did a ton of research online to make this decision and talked to lots of owners which is why I want to share our choice.  I have never found anyone that actually owns one that doesn’t love either the Flex, the Traverse, or the Enclave. A lot of people in the disability community are looking more to the Flex for good reason. It is a good option for people that have the ability to level transfer. It has huge doors and low seats but doesn’t have that ‘adapted’ feel.

post

The New Car Short List

Last week I posted about the great new car hunt being on. With Carters surgery less than 2 weeks away, the decision needs to be made pronto.I have received some really great advice and suggestions and here is what I have learned:

  1. Car dealerships are not open on Sunday in Denver. WHAT is up with that?
  2. VW has some of the best, responsive social media reps out there.
  3. I may be better off with a *gulp* MINIVAN. Oh, it creeps me out to even type it. I am a truck/SUV type girl.

While a mini-van makes a ton of sense I am just not sure that  I can do it. The big players in the market are the Sienna, Odyssey and Town & Country. Sienna is the ONLY one that offers AWD and that is pretty high on my list. Plus the 2011 has these wicked cool reclining seats that may look gimicky but for long car rides I can totally see how they could help with Carters leg circulation issues. Topping the reason for a mini-van? They can be converted with wheelchair ramps pretty easily. I just don’t know if I can do it though. Toyota’s have had a lot of issues lately although I was happy to see they are mostly manufactured at a plant in Indiana. But, I may have mentioned, it is a minivan!Topping the list of mid-size SUV’s I need to look at are in no particular order:

  • Chevy’s Traverse
  • VW Touareg
  • Subaru Forester
  • Acura MDX
  • Ford Flex

Can I just say that I am loving the Consumer Reports videos for helping to make this easier? It $5 for the online version for a month and I just may keep it when I am done with this. It has saved me so much leg work!I only have two more Saturdays to look, and this one is pretty filled with basketball. Wish me luck.*Nothing in this post is sponsored or compensated in any way. Promise.

post

Social Media for New Car Shopping?

looking for a new wheelchair friendly carIn the next month I plan to buy a car. Whether or not it is new will depend on pricing and other details but the main gist of my car hunt is to find something for Carter and I. Let me repeat that—for the first time I am looking for a car that fits just Carter and I. That feels so good to say! Finally! Bob will take the older SUV and pass that to Con next year when he starts driving.  So, this car is really about making life easier for the two of us to get around-wheelchair and all.I’m wondering how I can bring social media and blogging into this hunt??? Cause the deal is, I AM buying the car. I have no illusions that by being a blogger I should get any sort of deal, let’s face it, I am not that popular of a blogger~LOL! What I am hoping is that the social media departments of some car companies may help to make sure I find the RIGHT car for us. I am going to be blogging my way through this both here and on Spina Bifida Connection because in the disability world, the right car makes all the difference in your level of independence-whether you are the driver or not. AND for a mom with a wheelchair using kid, it makes all the difference in how much work is involved getting the kiddo out and about. Ideally, as part of this hunt, I would be able to try out several different cars in more than a 20 min test drive.I would like to really examine some of the options out there. Right now I am pretty open but I have narrowed a few things down.What I want:

  • Super easy access for Carter to transfer into the front, passenger seat. It should have as little of a difference in height from his wheelchair seat as possible. Our current car is too low and the SUV is too high.
  • Probably looking for a ‘cross over’-a mix of a car and an SUV. I rented a cross over Kia Sorrento this past summer and liked the overall feel of this style of car.
  • Decent leg room all around. While Bob and Connor won’t be the main riders of this car, they are 6’2 and 6’8. They should be comfortable if we need to use it as a family.
  • Something with an easy lift up SUV type trunk that I can throw the wheelchair in without having to do any breakdown.
  • All wheel drive for those CO roads.
  • High crash and safety ratings
  • Easy, fold down seats

Somethings that will weigh into the decision if I find a few models with the above criteria:

  • Gas mileage. Would love to explore alternative fuel options-not big on the corn fed alternatives though
  • Socio-economic and ecological impact of the manufacture
  • Cup holders-big ones, in the middle of the passenger and driver–yeah, silly I know but it’s the little things :)
  • navigation system
  • ipod jack and satellite radio (we are passed the days of needing dvd entertainment systems for the kids)
  • LOVE the safety of ONSTAR in the SUV I have now….would like a system like that again
  • High reviews from current owners and places like Consumer Reports
  • Thinking I want a silver color-seems like it would blend road sludge the best
  • Would like to look at ramp/lift systems but we are not ready to go there yet. Carter can still transfer safely given the right environment.
  • Heated seats

SO, who has suggestions on what I need to add to my list or a car they love I should check out? He is having surgery in 2 weeks and I would like to spend this last bit of time we have before the major recoup visiting lots and having him try them out.

Related Posts Plugin for WordPress, Blogger...
Desktop Version | Switch To Mobile Version