It's been a while now since I have written any advice for special needs moms. A lot of that is because my boys are both more than old enough to read and process the things I write and I am sensitive to how they perceive things. But the one thing I know for sure (in the words of Oprah) is that a special needs mom (or ANY parent) HAS to follow their gut. Its the one thing that you were given that is more valuable than any doctor has or any medical book could ever teach. I learned when my youngest (born with spina bifida) was just 4 months old that doctors didn't know everything about him that I did. He needed a shunt (a device that drains extra fluid off the brain) surgery and they kept saying no. They were experimenting, seeing how far they could push the limits. I knew what he needed in my gut and one day that I will never forget I packed him up and demanded they admit him for the surgery. Everyone thought I was nuts. Turns out my little guy who could never open his hands came out of surgery with them open. Right there I got my power and knew if I did nothing else in all of this mess I knew I had to follow my gut. In his almost 17 years there have been thousands of times when ...

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