Dear Wyatt Samuel, You probably don't know this but in two days your mom and dad will leave your 3 sisters behind in California and make a 12 hour flight to meet you in Russia. That's them: I have to be honest with you little guy, when your mom first started talking about you I thought she was C R A Z Y! I thought it was a phase she was going through. I mean, seriously, she is just coming out of the hard years with Hannah (your sister who also has spina bifida), she has 3 girls, and to be honest, things in their lives have been a bit rocky the past year or so. Why in heaven's name would she really want to adopt another child with spina bifida? One child with significant special needs is already so hard. I clicked over to your picture on Reese's Rainbow and I saw what she saw. I imagined you not having access to the medical care that has made Carter's (my son who was born with spina bifida) life as full and wonderful as it. My heart broke for you knowing that your future would likely be spent in an institution because you had a physical disability. But I still thought your mom was C R A Z Y and, honestly, I doubted she could ever pull it off. Boy was I wrong! Your ...
Confirmation That I Suck As A Superwoman
By now, most everyone knows about Pinterest. It's basically a virtual bulletin board of things you love, hate, aspire to, inspire you....really whatever you want to 'collect'. It's the same thing we all did as teenage girls, collected magazine pictures of bands, outfits and boys. Someone just figured out how to make it online and let you share it with the world. I'm not going to lie. I am kind of obsessed with it. I fall asleep most nights swooning over cupcakes I will never make, projects I will never do, and pictures I wish I had taken. It's addicting. And I am in awe that there are women (and men) out there that really do this stuff. I'm convinced pinterest is made up of two groups of people: my mother-in-law, the uber Martha Stewart Room Mom extraordinaire and then people like me. You know, the mom that is actually asked to just buy some cupcakes at Costco instead of bake them at home. Pinterest has given me some awesome ideas that I am totally planning on doing. Like this surprise for my nasty mailman this winter... Source: smosh.com via Barb on Pinterest Or the creepy cupcakes I could totally buy from Costco, mess up and stick doll parts in to ...
For the Love of Fairies, STOP the Freaking Auto-DM’s
Dear Auto-dmer's, See her? A few moments ago she was flitting about petting butterflies in my garden. Now she is dead. I hope you're happy. You see, every time I get an auto dm on twitter asking me to like someone's FB page, a fairy falls over dead. Your DM's annoy me so much that a fairy has to leave her peaceful flower garden to sprinkle me with pixie dust so that I don't reach through my laptop and punch you in the throat. In her gallant effort to rush here to save your throat, she invariably suffers heart failure and falls to the ground dead shortly after. And for what? REALLY? Do people actually rush over to facebook and follow you? Do you get responses like: Oh, thank goodness, I was looking all over facebook for a link to like you & could only find your twitter account! or If I follow you on facebook, can I please get more spam messages like this? or I know we just met but I can tell in your last 140 characters you feel the connection too. Let's FB chat! Cause I am kinda thinking you don't. Or if you do, you may want to look into places that provide bulk restraining orders. I'm going to give you the benefit of the doubt and hope that somewhere in some ...
I Have Too Much Time On My Hands
Everyone is doing it. So I couldn't help myself Mom. I had to make one of these cheesy posters. ...
Meth Monday: The Devil Wants His Due
I struggle with whether or not I want to share my live journal about my latest round of medications since I often dance around the subject here and there I don't want to fill you in on all the gruesome details and I certainly don't want my blog to become about documenting my illness. I have always been and always hope to be the positive voice among some of the sucky stuff that my son deals with in having Spina Bifida. But as I teach him how many people have come together and learned so much from his story through this blog and Spina Bifida Connection, I can't help but note my own hypocrisy in not being more open with my own story. I am an over googler. When I want to know something about a medical condition, I want to know the exact precise timeline these things happen. Did I ever share with you that when my father passed away I sat there holding his one hand and with my other I was googling terms like "how long after the toes turn blue will his breathing stop". I am just the kind of person that needs a blueprint. The more prepared I feel the better I can cope. But when I google this for a blueprint I just see general talk. So, here is my experience for those of you looking for ...